SeanJ Simon

SeanJ Simon SeanJ Simon SeanJ Simon

SeanJ Simon

SeanJ Simon SeanJ Simon SeanJ Simon
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About Me

My life

Message from My Mom

Message from My Mom

I am 9 years old and I live in Miami, FL. 

I  have a special heart. I was born with a bicuspid aortic valve, which is one of the most common types of congenital heart defects. My heart works just as a normal heart would but I have to see a cardiologist every year. My mom and I thought it would be cool to share my story with you. 

Here are f

I am 9 years old and I live in Miami, FL. 

I  have a special heart. I was born with a bicuspid aortic valve, which is one of the most common types of congenital heart defects. My heart works just as a normal heart would but I have to see a cardiologist every year. My mom and I thought it would be cool to share my story with you. 

Here are few other things you should know:


Favorite things to do

Travel ,eat breakfast in hotels, go to the beach, and play roblox with my friends  


Favorite Colors

Blue & Red


Favorite Foods:

Pizza, oreos, roti and curry chicken

Message from My Mom

Message from My Mom

Message from My Mom

My Name is Lisa Smith and I am the founder of the Whoa!man Brand and co-author to the book My Special Heart.       "My Special Heart" is a real life account of how SeanJ navigates his life after finding out about his special heart. Having a child with any medical issue/alert is a very difficult to process and accept. It’s even harder to e

My Name is Lisa Smith and I am the founder of the Whoa!man Brand and co-author to the book My Special Heart.       "My Special Heart" is a real life account of how SeanJ navigates his life after finding out about his special heart. Having a child with any medical issue/alert is a very difficult to process and accept. It’s even harder to explain to your son or daughter. I am fortunate that SeanJ is ready and willing to share his experiences and his life with the world. We hope sharing our journey helps and inspires other families.

Join My Journey

Message from My Mom

Join My Journey

We would love to hear about all the things that make you special. 


Please send us some love: 


  1. Buy the book (Shop)
  2. Click on Connect with US



To find more about Congenial Heart Disease please visit:

www.mayoclinic.org/diseases-conditions/bicuspid-aortic-valve



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